Our vision is a world without Myalgic Encephalomyelitis (M.E.)
How You Can Help
- Simply book your next holiday with Charitable Travel and tell us you want to support Action for M.E. The charity will then benefit from the free donation you can make as part of the booking process. To read more about how this works, head to our ‘About Us‘ page.
- If you want to make a donation to Action for M.E. and you are not booking a holiday, click here to visit their website.
- Visit actionforme.org.uk to sign up to newsletters, and follow the
Action for M.E. social media pages, and help spread the word.
How You Can Help
How You Can Help
- Simply book your next holiday with Charitable Travel and tell us you want to support Action for M.E. The charity will then benefit from the free donation you can make as part of the booking process. To read more about how this works, head to our ‘About Us‘ page.
- If you want to make a donation to Action for M.E. and you are not booking a holiday, click here to visit their website.
- Visit actionforme.org.uk to sign up to newsletters, and follow the
Action for M.E. social media pages, and help spread the word.
- Simply book your next holiday with Charitable Travel and tell us you want to support Action for M.E. The charity will then benefit from the free donation you can make as part of the booking process. To read more about how this works, head to our ‘About Us‘ page.
- If you want to make a donation to Action for M.E. and you are not booking a holiday, click here to visit their website.
- Visit actionforme.org.uk to sign up to newsletters, and follow the
Action for M.E. social media pages, and help spread the word.
Myalgic Encephalomyelitis (M.E.) is a long-term, fluctuating, neurological disease that causes symptoms affecting many body systems, more commonly the nervous and immune systems. M.E. affects an estimated 250,000 people in the UK and around 17 million people worldwide. Following the Covid-19 pandemic, we have also seen a significant increase in the number of people with M.E. symptoms following Covid-19 infection, and those with long COVID, accessing our information and support services.
Around one in four people with M.E. can become severely affected by the disease, often unable to leave the house or their bed. Accessing appropriate care and support can be a challenge.
“I feel like I wake up with a mattress on me most mornings. When I wake up with post-exertional malaise, there is an elephant sitting on the mattress. He stays there for days. He steals my words and fills my brain with wet cotton wool and wraps his trunk around my neck, so I struggle to swallow.”
At Action for M.E., our mission is empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness and ultimately a cure. We want to end the decades of ignorance, injustice and neglect faced by people with M.E. You can read more about how we will achieve this in our 2022-2027 strategy, ‘Shaping our future together’.
We provide targeted information, support and advice to children, young people, adults and families affected by M.E., as well as holistic, whole-person care through our Healthcare Services. We provide information and resources to healthcare professionals, educators and employers, and also offer peer-support services and an online community that helps to reduce the isolation that so often comes with M.E.
Alongside this, we work closely with professionals and policy-makers to improve access to appropriate care and support services. We have been working with the M.E. community to identify the Top 10+ research priorities through the M.E./CFS Priority Setting Partnership (PSP), and we are the secretariat for the APPG on ME. We also collaborate with scientists, patients and clinicians to move biomedical research forward, including funding PhD studentships and are currently co-leading on DecodeME, the world’s largest M.E. DNA study.
“You have been the light that has helped us navigate these most challenging of months, providing bridges between agencies and disciplines, with your experience, expertise and calm, unwavering support.”
As a charity, we rely on donations and fundraisers to support our vital work. Help us change us lives by donating today, or visit our website if you’d like to learn more about fundraising on our behalf.
Get in touch
Charity registration numbers:
England and Wales 1036419
Scotland no. SC040452
Registered company number: 2906840
by net effect