We aim to inform, advocate for and empower anyone affected by a genetic bleeding disorder.
How You Can Help
- Simply book your next holiday with Charitable Travel and tell us you want to support The Haemophilia Society. The charity will then benefit from the free donation you can make as part of the booking process. To read more about how this works, head to our ‘About Us‘ page.
- If you want to make a donation to The Charity and you are not booking a holiday, click here to visit their website.
- Visit haemophilia.org.uk to sign up to newsletters, and follow the The Haemophilia Society social media pages, and help spread the word.
How You Can Help
How You Can Help
- Simply book your next holiday with Charitable Travel and tell us you want to support The Haemophilia Society. The charity will then benefit from the free donation you can make as part of the booking process. To read more about how this works, head to our ‘About Us‘ page.
- If you want to make a donation to The Charity and you are not booking a holiday, click here to visit their website.
- Visit haemophilia.org.uk to sign up to newsletters, and follow the The Haemophilia Society social media pages, and help spread the word.
- Simply book your next holiday with Charitable Travel and tell us you want to support The Haemophilia Society. The charity will then benefit from the free donation you can make as part of the booking process. To read more about how this works, head to our ‘About Us‘ page.
- If you want to make a donation to The Charity and you are not booking a holiday, click here to visit their website.
- Visit haemophilia.org.uk to sign up to newsletters, and follow the The Haemophilia Society social media pages, and help spread the word.
We are the only UK-wide charity for everyone affected by a genetic bleeding disorder, a community of individuals and families, healthcare professionals and supporters. We could not deliver this level of support without the generosity of our supporters – people just like you! The money donated will make a huge difference to our community. We are here for people throughout their lives, wherever they live in the UK. Whether your child, a family member, a friend, or you yourself have a bleeding disorder, our services, information and support are here to help.
Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help families make sense of it all. Our Newly Diagnosed Weekends (NDW) are free events which support parents who have recently found out their child has a bleeding disorder. We bring together experts in bleeding disorders care to share knowledge and experiences, so families get the help they need to ensure their child gets the best care.
their child gets the best care. Over the course of the weekend families will meet a range of experts involved in haemophilia care including doctor, nurse, physiotherapist and play specialist and psychotherapist. Whilst the parents are attending sessions, we offer a free creche. This is operated by staff with experience of dealing with children with bleeding disorders which is open to all children. This is a whole family event, and we welcome all children, including siblings without a bleeding disorder.
Every summer, we run a fun activity packed camp for young people with haemophilia and other bleeding disorders. The camp is for children aged between 9-15 years where they have the opportunity to share their stories and make lifelong friends in the community. Our Youth Camp helps children learn to be adventurous in a safe environment, often as their first time away from their parents after diagnosis. Spending time with other children who have the same experience is life changing for those that attend and helps them build confidence, make friends and feel less isolated.
Our Talking Red campaign helps women more aware of the symptoms of a bleeding disorder such as heavy periods, bruising easily and prolonged bleeding after a procedure or childbirth. We aim to promote a better understanding of what it means to live with such a condition. Women who come to our events leave feeling empowered, connected and confident in living their day-to-day lives. Our information for older members of the community supports them in managing their complex and multiple conditions and understand what services they
complex and multiple conditions and understand what services they are entitled to. Thanks to the fantastic support of our women members we have spread the message right across the UK, but we still have lots more to do.
We are a tight-knit community and thanks to your support, we hope to grow to become a ‘one-stop shop’ for everything related to genetic bleeding disorders. We also lobby for the best possible treatment and care to be available for our community across the UK. We don’t receive any government funding and serve a community that is largely invisible to the public eye. Every year, we have to raise around a million pounds from scratch to ensure that we are there for the community when it needs us.
As bleeding disorders are rare, many people will never encounter The Haemophilia Society. This means we have to work doubly hard to raise both awareness and understanding of bleeding disorders as well as the funds needed to give those affected the services they need and deserve.
Your support will be hugely appreciated and will change lives of people who live with rare genetic bleeding disorders.
Get in touch
Charity reg. no: 288260 in England & Wales SC039732 in Scotland
by net effect